A.S. Face 0312: Fanieliz Custodio

my name is Fanieliz Custodio, I am 25 and I have now about 3 years with AS.

Im just in tears looking the page that you create, i am a fighter… a person that believes in God and im pretty sure that my life is gonna be great, the AS cant stop me, i always said that SHE IS IN THE WRONG BODY.
I got married on December 28, 2011, mu husband lives in NYC, so im gonna move soon! hopefully!
Now I am with a HUMIRA and we can say that im ok, but the pain its always there, i just think that is why I decided that the AS cant take control of my life, I am the boss, not her…
i create an account on twitter because i want to meet people in my country with the same condition, the name of the account es EspondilitisRD.
If you need more info about me just ask.. i just wanna help!
Best regards.
Fanieliz Custodio
Dominican Republic

7 Responses to “A.S. Face 0312: Fanieliz Custodio”

  1. very nice story and i see you are wearing blue for Ankylosing Spondylitis

    • Thank u! I’m gonna share the completly Story about me, it’s a little bit longer! Jajaj!

  2. Dear Fanieliz

    Thank you so much for sharing your story with us.
    Sincerely Cookie

  3. Yes I am!!! Sorry about my “short story”… I promise I’m gonna share more information about me! God Bless you all! I’m here for everything that you need!… @FanielizCG @EspondilitisRD

    Fanieliz Custodio
    Dominican Republic

  4. You are just GORGEOUS!!! Congratulations on your wedding. I am looking forward to you joining your husband, too! I’m looking forward to more of your story as well. Like, how you found out you have A.S., the support you have in the D.R., how the move to New York will affect you. I think you will do wonderfully in NYC and will inspire many people.

    • Oh wao! Thanks! I don’t think i’m gorgeous but THANKS a lot! God bless you! Uhmm… My english is not the “best” so im gonna try to explain a little bit of my story.

      When the diseases stared it was terrible because of the pain in my legs, neck, knees, arms, and my back, i was really intense, and i went to 17 different doctors and nobody said anything about my problem. 7 months later i went to another doctors appoiment and he was the one that really was interesed in my helath problems. So, he did a blood test, and i was HLA-B27 positive and it was so hard, it really was… I was working a lot with all the pain and i was in a point the i can even walk, my legs didn’t responsed and it was so hard, i was sad and asking why me? Why God? I need an answerd! (My story is LONGGG, so im sorry) jajjaja

      NYC is better for me, i love the weather and it works perfect for me, so i think is gonna be great for my health. My country is beautiful, and i really loved, but the temperature is just crazy, ups and dows every day and that’s not good for me!

      In Dr we dont have the support tha we need, and the “good doctors” are really expensive here and poor pleople can pay for them. That makes me so sad and im fighting here for all of us because we need that the goverment helps us with the medications.

      My support team is God, my husband, family, and friends. I dont talk about my health, im always fine for my friends, i never said that im on pain, i always try to not talk that much, because they cant’ do anything… Im very postive, im pretty sure that everything happends for a reason, and God has the total control of my diseases and my life, and he knows that i want a family and im gonna have my family!

      We need to understand that this condition can’t take control of us! We are strong and we have to be strong for us, for our families.

      I promise that im gonna share more details about my health. Sorry because i know english but im better talking than writing jaajja! Soory about that!!

      God Bless you all!

  5. Hi Fanieliz! 🙂
    Beautiful and wonderful attitude too!! Great combination. 🙂
    Congratulations on your wedding and move. I am on humera also. Keep being positive and strong. ❤
    (hugs)
    Marti (face 199)

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