A.S. Face 0304: Lisa-Marie Mannion

Hi my name is Lisa-Marie Mannion, I am 32 years of age. When I was born I had talipes in both feet, I had to wear plastic insoles in my shoes until i was at the age of 11. As a child i was always complaining that my hips/pelvis, back, knees and ankles hurt but my mom was told that was a good thing, as it meant that the insoles were working and that my feet were being corrected. As a teenager I also complained of hips/pelvis, back, knees and ankles hurt, yet again I was told that it was normal as it was just growing pains. When i turned 18 I became a care assistant. I still suffered the pain on and off but it was put down to constantly lifting the residents. At the age of 27 I feel pregnant with my daughter, who is now 4, my hips and back really suffered but I was told that it is just normal pregnancies related back ache. Being a 1st time mom I believe them, why wouldn’t I after all they are the doctors and midwives they now what they are on about. When my daughter was 4 1/2 months old whilst on the pill I caught with my son.  Yet again my hips and back took a real beating but this time I researched stuff before I saw my doctor, so he couldn’t fob me off like they did with my daughter, when I was 6 months pregnant i was diagnosed with PSD (pubic synthase dysfunction) which was really painful. When my son was 10 months old I suffered with excruciating pain in my hips to the point that my hips would lock up so I couldn’t walk. One night I had enough of the pain and my doctors telling me that it was just a pulled muscle that I went to the local hospital A & E department who ended up giving me strong painkillers and tranquilizers  just so I could sleep and told me to go and see my doctor and tell them that the hospital have requested I come back and see them. That day my usually doctor was off and I saw a locum doctor how listened to me and requested x-rays and blood tests for me. During this time I fell pregnant with my 3rd child. When i was 10 weeks pregnant i was refereed to the physio department as a precaution due to me suffering with PSD with my last pregnancy. I really suffered with this last pregnancy.When my new son was 5 months old I was still getting the pains I suffered when I was pregnant so my doctor said it couldn’t possibly be PSD and that he was going to refer me to see a rheumatologist. When I went and saw the rheumatologist he requested a MRI scan, that was 6 months ago, when I went back to see him he told me that it did look like I had AS but he wasnt 100% sure so he was going to send me to see a specialist how specialised in spondylitis. 3 weeks ago i went and saw my new specialist and after I saw him and talked to him he as said that yes I have AS. Yes I may have this debilitating illness but I’m going to try to not let it stop me from living my life to its fullest. The people who I feel sorry for the most is my children, the oldest is 4 and my youngest is 18 months old, they know that mommy can’t always do all the stuff that they want to do some times. My worst times of the day are 1st thing in the morning, when I need to take my strong painkillers to get out of bed, and last thing at night when the kids have gone to bed as i can finally relax. the hardest thing is when i look at my children and know that there is a slight chance that they may have inherited it from me.

Utah United States of America

2 Responses to “A.S. Face 0304: Lisa-Marie Mannion”

  1. being a dad my self & with Anglosing spondyiltis I do no how think & more to the point how you feel I have 7 children my wife and I have had 4 of the children checked to see if they are ok as this was offerd to us by Manchester university so we took them up on it & touch wood they are ok so I do share your concern were our children are concerned I have had A.S for 43 years now & my first born is 40 now & the rest are all grown up so my grandchildren are my concern now . well I wish you well & hope your troubles are few with your A.S from Peter 0286.

  2. Dear Lisa,
    Thank you so much for sharing your story with us. I am glad that you have finally been given a diagnisis so you may begin your journey of a better quality of life. I know the worries of passing this on to your children, but you have to focus on loving them and enjoying every day spent with them.
    Sincerely Cookie

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