A.S. Face 0301: Dave Black

Hi Everyone,

My name is Dave Black and I’m in the UK and I’m coming up to my 49th birthday and have had AS for nearly half of my life.

I was first diagnosed in 1989, before this I was treated for quite a few things including trapped nerve etc and went through acupuncture, physiotherapy and at first I was not linked to AS. By chance a second opinion by another GP at the practice sent me for tests for AS.

The tests confirmed AS in both sacro iliacs and bottom of the spine. This has since progressed to my neck and chest. Various tablets etc have been tried as you can imagine over the years. A couple of weeks before Christmas 2011 my specialists referred me to biological treatment and I have been having fortnightly injections of Humira since then. A difference? Yes, I certainly feel the pressure lifted off the joints soon after my injections and I hope continued treatment will improve this.

Although I will never, ever, play sport again, which I badly miss I at least have improved mobility. Saying all this there is still the bouts of depression and pain as associated but that is one thing that after all these years I have got used to.

I am worried that it will affect my 20-year-old son and it is too early to tell yet but I pray it does not take over his life.

Sorry if this all seems out of sync as I write as I am remembering, a long time to suffer and as people have mentioned already a condition no-one can see so they do not understand.

Good luck to you all and thanks to this site I realise I’m not alone but it does hit home how few of us suffer in silence.

United Kingdom

5 Responses to “A.S. Face 0301: Dave Black”

  1. Dear Dave,
    Thank you so much for sharing your story with us! I am glad the humira is helping you. I hope one day those who suffer in silence will come forth and have their stories known.
    Sincerely Cookie

  2. Thanks for joining the family Dave. There’s so many “half a lifer” stories in our family. I’m a big fan of “early detection.” I’ve often wondered what it would have been like if I would have “pushed for a diagnosis” when the first symptoms of AS showed up. What if we would have started Metho sooner (NSAID’s killed me)-what if we would have arrested the progression sooner-would the AS have continued to wreak havoc?

    My point is Dave- because YOU have AS: if, and that’s a BIG IF, your son shows “early signs” of AS- they will diagnose AS quick and get him on the “biologics” quick(something else that wasn’t around back then). Because YOU have AS Dave- I think your son will be spared what you have gone through even if he gets it. I hope you find a certain satisfaction in that sacrifice. A certain reassurance. Making lemonade out of lemons is our lot isn’t it.

    You see, I have AS, my dad developed AS and colitis late in life, and my brother has colitis (all related right). My 23 year old Nephew is pretty paranoid. I feel better knowing that at the first sign of the “pain that doesn’t heal”, we’ll have him into the rhuemy and pile on that damn AS so heavy it’ll be beat down before it has a chance to grow.

  3. PS-what I said above applies to all you “Mothers” out there too. (PSS-I heard the other day that Enbrel is going to go generic next year! I hear it’s going to be so cheap they’re going to put it in our drinking water, I hear it’s going to be so cheap it’ll be the first and not the last line of defense. In fact I’m so optimistic about the biologicals and future drugs-I think I’d love to be a 23 year old with a diagnosis of AS. Then I’d have a “cool” disease and the chicks would dig me (I can say chicks on this blog can’t I?)

  4. Welcome. thanks for sharing your story. I have two sons with AS. But I’ve discovered I can do more than I believed possible. Elizabeth face 40

  5. Thanks for sharing your story Dave 🙂

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