A.S. Face 0273: Hollie Godfrey

My name is Hollie Godfrey. I am 39 years old and I live in Riverdale Utah and I was just diagnosed with A.S. in February. I have been in pain for over three years and was seeing a doctor that had no urgency to find out what was really wrong with me. I explained the pain I was feeling and how my chest constantly hurt. He had done some ex-rays and EKG’s but found nothing. He finally put me on a beta-blocker to keep my heart rate lower, which did nothing for me…In January of this year I went to a clinic at the hospital and met my new doctor, a third year resident that told me she was not going to give up on me! Finally some hope!! I wasn’t being treated like I was crazy or just wanted pain meds (which I never asked for). She ordered a series of blood test and found I had the HLA-B27 gene, from there we did a pelvic ex-ray which gave her reason to order a MRI. She was right in her thoughts. Ankylosing Spondylitis. She has referred me to a rheumatologist, which I love!! Great man!! I have been on Hurmira since Feb. 14th, the first dose was like a miracle but lasted only ten days, the second one lasted even less. I have been told it could take up to 4-6 weeks to really feel good, so I am looking forward to that! Its nice to know that I am not alone, all these faces on here really give me comfort and I am glad I found this page…My hopes are high!! Thank you!!!

Riverdale Utah United States of America

3 Responses to “A.S. Face 0273: Hollie Godfrey”

  1. Hi Hollie I live in Draper Utah wow finally found somebody else who has AS and lives in Utah! I am so glad you found a great DR! I was diagnosed several years ago! I have been on Remicade infusions and I am doing great on it! I was on Humira but we changed insurance it was to expensive with new insurance. I am so grateful Remicade has been working for me…hope all goes well with you!! Let’s connect on Facebook!

  2. Love to hear everyone’s stories too because then you dont feel alone or crazy. I too had costrochondrial pain in the chest or breatbone. My rheumatologist told me what it was but I had to come across from reading that it is associated with AS. It would be nice when I tell her symtoms if she would say that is a symptom of AS because otherwise I feel like I am just complaining. She is treating me like I may have As but isnt completely sure. I said I have been on Humira for 2 years so why would you give me a drug and not be sure. She said because you told me you felt better. She doesnt understand why I still have back and hip pain, fatigue, bloodwork all showing inflamation ect.. she says humira gives her other patients energy and they go on and lead a normal life. She makes me think Im crazy. Humira did take away alot of joint pain and morning stiffness but I have degenerative disc disease which is a separate issue and my back causes me to be on pain meds. Guess she thinks by taking Humira I should be cured, thats why reading everyone else’s story I learn that it helps but people are still in pain and I am not crazy but just like many other people. I am hla b27 positive also. Needless to say I need a new rheumatologist but just the thought of going through this all over again makes me exhausted. Good luck to you and hope the Humira helps more and more. Jennifer c. In New Jersey

  3. Dear Hollie,
    Thank you so much for sharing your story with us. The best advice I can give to you or anyone.. give your medicine time to work. I was on remicade for 7 months or so before I began to feel better, doctor said give it time. I did and was the best decision of my life.
    Sincerely Cookie

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