A.S. Face 0267: Crystal

My name is Crystal. I am 28 years old. I was diagnosed about 4 years ago but have had it long before that. I had a hysterectomy at 23 and my thyroid killed before that (graves disease) and that is when my problems got worse on top of all these problems, a-fib scared me the most until…..  The pain in my hips was out of control, my back felt like it would break any seconded. At this time my daughter 3 my son was a week old. I finally went to my pcp. He told me it was all in my head and I only wanted pain medication. Not in those exact works but implied. I went to another pcp and explained I don’t want medication I want answers he believed me(!exciting moment) and sent me to my Rheumatologist who did a battery of test when he found I was positive for the HLA-B27 gene and all my symptoms fit.  He never made me feel bad for hurting or not being able to explain the exact type of pain! I finally had an answer and it wasn’t “all in my head”.  I am now on humeria and a few other things but, I am better than before, I can move, slowly…

I had always felt guilty because my husband married me and I was not so sick then went down hill fast. He has stayed with me supported me and cared for me. He has taken it to heart through sickness and health (even when it is more sickness than health).  If it wasn’t for him and my two children I would have given up. If my doctor didn’t believe me who would. I am so thankful for my husband and the love and support he has given me. Because my husband has supported me I went back to school got a degree in American Sign Language Interpreting. He has shown me that life races can be won slowly. I have actually started painting again making bows again but in my own time! I love him and so thankful to have him in my life the pictures are of me and the things I have started doing.

One more time being thankful! Support groups like this help get awareness out and for us, someone who understands what you are going through! Thank you

Armarillo Texas United States of America

5 Responses to “A.S. Face 0267: Crystal”

  1. I love your paintings. So much color in such a dark world. Me thinks you bring that same color into your life.

  2. Dear Crystal,
    Thank you so much for sharing your story with us. Derek is right about you bringing so much color in to your life. I understand the feeling of guilt with your husband. Continue to do things you love
    Sincerely Cookie

  3. Lovely paintings and bow! Thank you for sharing.

  4. Beautiful paintings. Thank you for sharing your story. Glad you found this site. You are not alone.
    ((face 199)

  5. Hi- I’m around your age. I am married for 3 years now. We haven’t been able to have kids yet but want to. We might adopt. I’ve also started to get more interested in painting and crafting stuff. They haven’t been able to diagnose any heart problem for me except early heartbeats but I think I have a heart issue. I have liver congestion as well. How did you get a-fib? Is that from graves or from AS? Did the hysterectomy come from a pregnancy complication? It’s ok if you don’t want to answer I was just curious. Find me on FB if you wanna chat! ~ Kristin

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