A.S. Face 0266: Cecil Lyons

HELLO MY NAME IS CECIL LYONS I AM FROM A SMALL TOWN IN NW FLORIDA CALLED PORT SAINT JOE. I AM 44 YEARS OLD AND I HAVE AS. I WAS DIAGNOSED LAST YEAR AFTER MANY YEARS OF BACK PROBLEMS THAT WERE MISDIAGNOSED AS MECHANICAL ISSUES. I HAVE REALLY GONE DOWN HILL IN THE LAST FEW YEARS AND NOW HAVE ISSUES WITH MY SI JOINTS, NECK, KNEES, SHOULDERS, AND CHEST. I AM CURRENTLY ON HUMERA BUT I KEEP HAVING TO COME OFF OF IT BECAUSE OF SICKNESS OR INFECTION. ITS GOOD TO FIND A SITE WHERE I CAN SEE THAT I’M NOT ALONE AND SEE THAT OTHERS ARE HAVING MANY OF THE SAME ISSUES THAT I AM.

Port Saint Joe Florida United States of America

5 Responses to “A.S. Face 0266: Cecil Lyons”

I think the toughest time is the first few years after getting the diagnosis. It’s a fricken attitude adjustment ain’t it. I was diagnosed 11 years ago-and ya know, I was thinking the other day when I was “down about As”, and it dawned on me away that I’ve made it through 11 years-that’s a good thing. somehow I survived it, If I can survive that-certainly I can survive the next 11.

PS- is that a set of “legs” I see in the back ground? Could you pan to the left a little-maybe ZOOM a little? (WARNING- faces of AS does not condone this type of behavior without the express written consent of Faces of AS).

Somehow I think you’ll persevere Cecil.

Derek Weidensee said this on March 6, 2012 at 1:12 am | Reply
- Dear Derek
  You should get your eyes checked. I see more than just legs!
  
  Sincerely Cookie 🙂
  
  Cookie Has A.S. said this on March 10, 2012 at 9:48 pm | Reply
Dear Cecil,
Thank you so much for shaing your story with us. I find it does help to know we are not alone and here for each other.

Sincerely Cookie

Cookie Has A.S. said this on March 10, 2012 at 9:47 pm | Reply
Hi Cecil,

Oh how i can relate to what you’re going through with the Humira and having to keep stopping it to clear up a cold or infection. Hang in there. You are not alone…… Thank you for sharing your story.
(hugs)
Marti
(face 199)

Marti said this on March 17, 2012 at 3:14 am | Reply
Thank you for showing your strength!

Jacquie said this on March 19, 2012 at 2:53 pm | Reply

Our Stories

© Cookie Hopper and The Faces of Ankylosing Spondylitis , 2011. There is an implied agreement and permission granted to Cookie Hopper and the Faces of Ankylosing Spondylitis that the participants photo/story will be used only in order to raise awareness for Ankylosing Spondylitis. There will be no monetary value gained by either party. The Faces of Ankylosing Spondylitis agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved. Once a photo & bio are submitted to Faces of Ankylosing Spondylitis ( Cookie Hopper) , heretofore known as "Faces," the individual submitting to Faces gives permission for Faces or its representatives or organizations coordinating with or whose services are retained by Faces or the invisible illness or Ankylosing Spondylitis community to use the image/likeness, name, & your bio or portions of bio as written, from the moment of submission, for as long as Faces exists as a website and/or organization. All submissions become the property of Faces, and upon submitting, participants grant full rights to the submitted images & bios to Faces, and the right to use & name in connection to activities of Faces, from now into eternity, in all forms of media, including new media, and agree that they are the property of Faces from submission until dissolution of the organization." Once included the removal will not be possible due to being number, but every possible action will be made to change any information if you feel the need for it to be. Unauthorized use and/or duplication of this material without expressed and written permission from this blog’s author and writer of the individual story is strictly prohibited and legal recourse may be taken in the event of this happening. Excerpts and links may be used, provided that full and clear credit is given to [Cookie Hopper] [individual author of the story] [The Faces of Ankylosing Spondylitis] with appropriate and specific direction to the original content. COPYRIGHT and TRADEMARK NOTICE ©2012. There are underlying copyright interests in the various works of authorship associated with this the faces of ankylosing spondylitis. These copyright and trademark interests may not be reproduced and redistributed, with or without alteration in whole or in part, unless prior written permission provided by Cookie Hopper of Alvin, Texas US 77511, along with the individual author of the story. Trademark name “The Faces of Ankylosing Spondylitis” and " I Am The Face Of Ankylosing Spondylitis" name has been approved and acquired by Cookie Hopper February 10, 2012. Others wishing to use this name or logo are hereby requested to contact the owner Cookie Hopper to discuss their interest before doing so. The Faces of Ankylosing Spondylitis Trademark number is 40671 The stories submitted may not be used without the original author’s permission, along with Cookie Hopper, which you may acquire by submitting a request to Cookiehasas@aol.com. The phrase I am the face of ankylosing spondylitis and the phrase the faces of ankylosing spondylitis are protected under the copy right and trademark laws. By submitting your photo & bio to Faces of Ankylosing Spondylitis (Cookie Hopper) you enter into a legal and binding agreement on both parties side. Cookie Hopper agrees there will be no selling of the stories or monetary value gained. Cookie Hopper agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved. This site is protected under the Trademark and Copy right laws. 40671 as of January 2012.

%d bloggers like this:

The Faces Of Ankylosing Spondylitis