A.S. Face 0255: Alexa Tyson

My name is Alexa Tyson. I’m 18 years old and I was diagnosed with Ankylosing Spondylitis almost 2 year ago. I have been at a rheumatologist searching for answers for about just over 3 years. When I first was diagnosed it was definitely a struggle for me. When I first started going to the rheumatologist all I wanted were answers, I thought that being in the dark was the hardest thing and I just needed to know. Once I received my diagnosis I no longer wanted to know. Knowing this meant that it was real and something that I would live with the rest of my life. I’m a christian and hated God for giving me such an awful curse. The longer time went on the hatred and being miserable was getting old, almost as old as the medications they kept switching around. I finally started to come to terms with the pain and the struggle that I was going through in June 2011. The pain was still there and biting as always, but it was like a new light of hope. I started going to church again and got more involved. All over I had people praying for my healing. In November 2011 I finally was put on Remicade. Currently I call it the miracle drug. At first there seem to be no effect, but just about a month ago it started to work. I could actually sit for more than 10 minutes without being in tears. I may not be 100 percent better, but with how much better I do feel it has been a blessing. One of my favorite quotes is “What you survive today, Makes you stronger tomorrow.” That quote was on the back of our Team Alexa sweatshirts from the Jingle Bell Run for arthritis. No longer do I see AS as a curse, I now see it as a daily obstacle that with practice has just been getting easier. Maybe one day there will be a cure, but until that day you will find my fighting with family and friends by my side and a smile on my face.

Hastings Michigan United States of America

11 Responses to “A.S. Face 0255: Alexa Tyson”

  1. Thanks for sharing your journey with our AS disease and your walk in faith, Blessing!


  2. you have come a long way in your young life…..glad you are finding some peace and drive to overcome. Stay strong!

  3. Thanks I appreciate it.

  4. Bravo! Us “old folks” sure don’t have the corner on wisdom. We can learn from you Alexa. Thanks for building me up today.

    PS-love your faith.

  5. We all wish you the best, Alexa. Keep fighting and there will always be people to help.

  6. Thanks for the support!

  7. Hi Alexa, you may want to try Carol Sinclair’s ‘Low-Starch Diet’. I have AS too, since I was 16. I’m 24 now and the pain has only worsened over the past 8years… This low starch diet has given me some definite relief from symptoms and I’ve felt better on it than on the anti-inflammatory medications I’ve been given. And it helps to know you can manage your own symptoms! It may not be as effective for everyone but a lot of people seem to benefit… Dr. Alan Ebringer, consultant on Autoimmune diseases at the National Institute of Health in Washington is a proponent of this diet and recommends that anyone with IBS, AS, Crohn’s disease and other related arthritic conditions try the diet for 3months.

  8. Dear Alexa,
    Thank you so much for sharing your story with us. Such a wise young woman. I wish you the best.

    Sincerely Cookie

  9. Thank you for sharing! Keep up the positive attitude and keep reading about AS .

  10. Thank you guys so much!
    I went to the movies the other night and was actually able to sit through the whole movie with minimal pain! First time in three years! (: Remicade has been truly amazing, and helped even more since they moved it so I get them every 4 weeks.

  11. Welcome Alexa and Thank you for sharing your story. I love your attitude. 🙂

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