A.S. Face 0249: Tami Holm

I am 37 years old and have AS.  I was first diagnosed a year ago after dealing with arthritis pain for 20 years.  My first doctor told me to take an asprin a day and I would be fine. Since then I moved a got a new doctor who ran test after test.  This became my normal.  In 2002, while pregnant with my first daughter, I seemed to not have pain!  I felt great and things seemed normal.  But slowly the pain crept back and after the birth of my second daughter in 2006, the pain was constant once more.  In 2007 I gave up on baby clothes with buttons and shoes with laces.
Finally, by the end of 2007 I could no longer work.  I was a piano teacher and truly loved my job.  It caused a lot of strain on my marriage as none of his family could understand my pain.  So, by 2009, my husband left me and our daughters.
I was sent to a specialist and diagnosed with PsA in 2010.  I was put on Naproxen and Tylenol 3’s.  After more blood work and x-rays my doctors agreed that I have AS.  I am now on Methotrexate and Humira as well as the others mentioned.  I am tired all the time and the pain never stops, but that’s my life!
I have made so many friends along the way and feel good about myself!  I am happy!  This is not the life I would have chosen for myself, but it was the life that was chosen for me!
Tami Holm
Vernon BC Canada

8 Responses to “A.S. Face 0249: Tami Holm”

  1. Dear Tami,
    Thank you so much for sharing your story with us. Your attitude made me smile, thank you for that.
    Sincerely Cookie

  2. Tami – thank you for sharing your story! My husband left me and two boys 6 years ago because he did not understand the pain either. Being alone is a blessing and a curse – I relate as much as one can. Thanks again for sharing your story!

  3. Hi Tami!
    I had a couple marriages crumble because of AS. ( I wasn’t diagnosed until after my last one, but the fact that I was always tired, and in pain but not looking sick on the outside really put strain on them) I was so relieved actually, when I found out I had a reason, that I actually called my ex’s up and told them basically “see!!! It isn’t all in my head…I actually DO have something”. But even knowing the reason why still made me feel alone until meeting this group and seeing that I am not alone. YOU are NOT alone..we are all here for you. Thank you for sharing your story.
    Marti (face 199)

  4. Your loving heart is evident! Thank you for sharing.

  5. Thanks for sharing your story.

  6. My last girlfriend left me because of AS. We were best friends. It’s not good coming home from work and laying on the couch for a couple hours to take a weight off the joints. I don’t know whether to tell a girl up front I’ve got AS or is it fair to wait awhile then drop it. I’m so happy you have your daughters. It’s comforting to know they will be there for you forever. I’ve seen how daughters come to the aid of their mothers. You’ll be best friends.

  7. I also can relate to the relationship strain Tami, so sorry to hear about yours. It really is hard when those we think are closest to us can’t understand the pain and fatigue we’re feeling. Keep up your good attitude !

  8. You have an inspiring attitude. I can relate to “I’m tired all the time and the pain never stops, but that’s my life!”

    I have two girls too, they are about the same ages as your daughters. Bless you & your girls.

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