A.S. Face 0199: Marti

I was diagnosed with Ankylosing Spondylitis in 1998

I started noticing something wasn’t right in 1982. AS has affected both my hips.

They both need to be replaced.

Every time  I have been “brave enough” to have the surgery, something has delayed it….

AS is no fun at all.

I have to take meds to help with inflammation I was just pulled off some because they were affecting my liver.

When I have inflammation, It hurts to move. Making plans to do something is hard because one day I will feel just fine the next day I can’t get out of bed.

I’m tired of people thinking it is all in my head.

Until you walk in my shoes or anyone else with AS you will  never understand what it’s like.

I wouldn’t wish this on my worst enemy.

Marti (age 49)

Southwest Washington

11 Responses to “A.S. Face 0199: Marti”

  1. Dear Marti,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi Marti, thanks for your story. I understand the frustration (and the pain) some days are better than others, I hope you have more better days very soon!
    Dan B (0184)

  3. You are so kind to post this. I wish you strength of body, co tinted strength of heart.
    I love that you still smile.

    • Thank you Jacquie. I wish you the same. I always try to keep a smile on my face. I am generally a happy person. Although I wish I didn’t have AS and what comes with it, I AM happy to be alive. I think smilng and laughter are good for the soul. (plus I think it keeps us younger, I am very young at heart) lol. My body feels like it’s 85 but in my head I am much younger. =)

  4. I too get tired of people thinking it is all in my head, very frustrating – makes the internal battle even worse… self-doubt and self-preservation makes survival difficult. Thank you so much for sharing your story!

    • Valerie~ It truly is frustrating. Especially when you look “normal” on the outside. It’s very easy to fall into bouts of depression, at least that’s what happened with me. Hang in there hon. ((hugs))

  5. Thankyou Marti, keep on smiling !

  6. thanks for the comment marti, i wouldn’t wish this on my worst enemy either. quite isolating sometimes, but makes me more determined to stay strong, which isn’t easy (or possible) some days.

    all the best, matthew (face 270)

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