A.S. Face 0198: Debbie Skytte

My name is Debbie Skytte and I have suffered for many years but I am newly diagnosed with AS and Fibromyalgia. I had random swelling and pain at the age of 11 and 12 years old. Specialists at the childrens hospital wanted to say I had AS at the time but said I was far to young.I see now that juvenile ankylosing spondylitis is an accepted illness. 19 to the age of 23 things seemed to slow down and I was doing well but after the birth of my children I have suffered. I have had horrible experiences with doctors and lost my faith and trust in them. My new family doctor sent me for an MRI and a new reumy. Well here I am 38 and newly diagnosed. I live in the Northern part of British Columbia Canada and specialists are hard to come by and you wait months to see them. The Reumy I met would like me to go on Humira but i am nervous about this type of medication. My family Dr, says its a bad idea but I feel like he doesn’t even understand my illness and he makes me feels like i’m just depressed and i need more exercise. I walk for 5 hrs a day and my heels kill me i cannot imagine more walking. This web site has answered a lot of my questions and it is nice to speak with people who finally understand what I am feeling. My friends and family are great but have very little knowledge of the disease, so their understanding is limited. Everyone I tell about Ankylosing Spondylitis have never heard of it so we need to get word out there to get more research happening.

British Columbia Canada


6 Responses to “A.S. Face 0198: Debbie Skytte”

  1. Dear Debbie,

    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hang in there, I appreciate your strength to endure.

    Jacquie

  3. I can definitely relate to your depression as I too have been there. I am on Humira and am really feeling good and “normal”. I was afraid to be on any of these medications, but at the age of 41, I feel I need to find a better life. I watched my mother struggle with this disease and diabetes – she died at the age of 60 with no legs and on IP dialysis. My grandmother died before I was born and my mother died before my kids were born. I don’t want to struggle, be depressed, fatigued, and in pain like my mother did for most of my life– I figure the risk is worth the quality of life because with my family history, I am likely to die young anyway (just a fact). Good luck on your journey with this disease and thanks for sharing your story.

  4. Thank you for sharing your story, Debbie. I, too had ” strange” pains at a young age and was told it was “growing pains”! I’d like to laugh in their faces now!!
    It is very reassuring to find others that are going thru the same! So glad I found this site!!!

  5. Thanks everyone! Since finding this site I am feeling more positive! I feel like I have somewhere to turn with my many questions and its a relief to have people who understand!

  6. Thanks for your comment Debbie! Yes it is good to know that we arent crazy…and it seems to many of us start to think that! Also a simalarity that i noticed is after having children our bodies seem to not recover fully? We need to continue to fight to create awareness! Tx for your story.

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