A.S. Face 0180: Merritt Gregg

My name is Merritt Gregg from Columbia, SC and I was diagnosed with AS at the age of 20, now 30. After being on several NSAIDS (some of which helped but taken off the market) I am currently being treated with Remicade IV infusions every 2 months. This treatment has been working for me for the most part, but I have my bad days as others do. Somedays I struggle with the simplest tasks such as walking, climbing stairs, bending over, lifting heavy items and I can’t remember the last time I ran. I mean just ran (not just for exercise) but for fun or whatever reason. However, I find that I have the most trouble with AS when I’m trying to relax, but keeping an upright posture has always seemed to alleviate some of my pain. I try to make it a priority (ex. in bed reading, eating at the dinner table, watching a movie).  I’ve been working in healthcare for almost 10 years now, so whenever others at work see me limping, (sometimes with both legs) lets just say thats never a brief conversation. 🙂 I have a general idea of what AS is, but have not looked into it further (maybe) because I’d be afraid of how my life will be projected when I’m older. I don’t know if it’s a hereditary case for me, unless it’s a distant relative, but somehow I wound up with the diagnosis and will deal with it.

I married my best friend and am a proud father of a wonderful daughter and another on the way this coming August! I love reading, taking walks, working with computers, time with family and friends and am a movie fanatic.

Thank you all for your support to one another with this debilitating condition and I am privileged to be part of this group. God Bless you all.

Columbia, South Carolina United States of America


8 Responses to “A.S. Face 0180: Merritt Gregg”

  1. Excellent story brother! I really appreciate you sharing your story.

  2. Great Story, I was recently diagnosed with AS. I have been on a low starch, gluten and dairy free diet. It was rough going at first, but after the eight day detox, I feel better than ever. I wish you well and God bless you!

  3. Merritt, My son is 11 and has AS. He was diagnosed when he was 4. We live in Columbia, SC as well (actually in Cayce). Check out my blog – http://www.iwantacure.wordpress.com. I would love to talk with you.

    Thanks,

    Bethany

  4. Merritt–Welcome. The future doesn’t have to be that bleak. I was diagnosed at age 22.. I am now 50 and in the middle of Feb. I wlll test for my black belt (coming back last Feb after 9 years of no karate). Although concessions are made for me, it is still difficult. However, I have learned, for me, that moving as much as possible–is the key and very helpful. Whether one walks 5 minutes or more, then later walks some more, building up–and skipping days as needed–or does more extensive exercise-it helps. The extensive stretching we do at my dojo is extremely helpful to me.
    Congrats on the upcoming birth. Hang in there. MANY AS’ers live long and productive lives.

  5. Dear Merritt,
    Thank you for sharing your story with us,. Congratulations on the new baby coming. I understand the fear of looking into the future, but as with all things our futures never turn ourt as we plan. What works for me, is to educate myself, plan for my future and live for today. I will worry about tomorrow when it becomes to day.

    Sincerely Cookie

  6. I just wanted to thank you all for your kind words of support. I know we all could use a little sometimes. I have a Facebook for those who would like another contact.

    And to Bethany, I did try commenting on your blog with my contact info so we could get in touch, but it’s not there anymore. Feel free to write me on Facebook or email me at merrittgregg@gmail.com.

    • Merritt,

      Everyone person actually has two listings and a new release to them… I will search to find your comment and post it under her name.. I apologize sometimes spam gets them also… Lately we get about 200 comments a day lol So I am a busy girl lately.. My apologies.

      Cookie

  7. Merritt,

    When i saw your comment about being able to just run free i remembered myself. I think about being young and just running for no reason .. i miss those times. Although my AS is controlled for the most part and i can run sometimes AS takes so much from us mentally. This part most people don’t think about.

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