A.S. Face 0145: Pat Elliott

My Dad had AS and unfortunately it was too late for him as the medicines had not been discovered yet.  He was bent over with his nose closer to the floor than the ceiling.  I watched him suffer for years never thinking I would not only feel his emotional pain but his physical pain.  He never complained.  NEVER.  I would have trouble walking the mall in my twentys and could not understand how my friends could keep on going.  I went along for years until I had to address what what was going on with me.  I had a knee replacment four years ago.  What a blessing.  My hands started to have problems along with my spine and back.  I do not have the marker in my blood but my Rumotoid doc treated my Dad and knew how to diagnose me.  There are days when it hurts to even touch anything  I had to give up my job as I was a visitation supervisor for children trying to reunite with their parents.  I could not only sit for the visits but if I missed anything that would impact a childs life I would never forgive myself.  My husband is awesome.  He sees my pain and encourages me to rest.  That is abouth the only thing that helps.  This year for the first time I am having trouble wrapping Christmas presents and my friend is going to help.  I have learned to live with my limitations but I am so angry that I can’t do the things I love.  Snowmobing, unless I am a passenger.  I want to drive.  Jetsking, cant hold the gas and staying up at night.  I know I am extremely lucky to have such a supportive family.  I am taking humira injections, methotrexate pills, celebres and many more other meds.  I can’t take cortizone as. they give me the shingles.  I am not willing to slow down with my activities and it just makes me want to do more and outrun what is happening to me.  One day at a time.

Maine United States of America

2 Responses to “A.S. Face 0145: Pat Elliott”

  1. Dear Pat,
    Thank you so much for sharing your story and I hope one day to see your father’s name on this site also. I understand the pain involved in changing careers because you care enough not to let this disease impact someone elses life. That makes you a hero. I too, do my best to out run this disease as best I can and live my life to the fullest, and always learning how to do the things I love differently.
    Sincerely Cookie

  2. Thanks for sharing and I hope that your pain lifts, even a bit so you can enjoy the holidays! It helps to know that we are all in the same boat!!

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