A.S. Face 0099: Phil Collins

Hi, My name is Phil J. Collins (no relation to singer lol) Im 36 and live in Naple FL…I have been dealing with AS the last 17 years, real bad the Last 10 but was just diagnosed 4 years ago. I used to play Sports my whole life (Soccer,Basketball,Football,Golf,MartialArts) It’s been 8 years since I did anything active like that …. Most of my pain is in my hips, spine, chest/ribs area…. I get epidural shots every 3 months along with pain meds and Enbrel….No doubt this is a debilitating disease that no one understand unless they have it , no matter how u try to explain people don’t understand.
Phil J Collins
Naples ,Florida United States of America

7 Responses to “A.S. Face 0099: Phil Collins”

  1. Dear Phil,
    Thank you so much for sharing you story with us. It was funny someone had just asked if we knew who the people who were famous that had Ankylosing Spondylitis. Then I hear … you got mail and it was yours.
    I laughed because you said no relation to the singer, talk about perfect timing!
    Sincerely Cookie

  2. I never understood exactly what As entailed. I joined this group to support Phil, my brother. I read someones story everyday so that I can get deeper understanding. I talk about this a lot with people, cause they don’t really even know what it is. I have found several people to donate to the research of a place that does research for AS. I found it online here. It is interesting to read everyones story and how each person copes with this. I think this is a great site. As for someone without it all I can be is a voice to help with the awareness and hopefully with more research somehow something better can be found to help you all with this. Thanks for sharing your story. And Phil hang in there, cause I have your back in this fight.

    • Dear Aimee,

      I can’t begin to tell you how your comment affected me. Sadly it isn’t common that we have such a deep devotion of family support. I am trying to encourage people to share their stories about their loved ones who have Ankylosing Spondylitis. So that way we may all learn from both sides of the fence. I hope you will consider doing this. Phil is blessed to have such a loving person backing him up.
      Sincerely Cookie

  3. Hey Phil
    Amazing how similar our experiences are and appreciate you telling it. Hang in there and thanks .

  4. Thank you for sharing your story. AS affects everyone differently. With some adjustments (since my ‘hot spots’ are back, hips, shoulders, left foot and right hand/wrist) I started back with martial arts last Feb (after 9 years out) and just this Feb. earned my black belt. Don’t give up–Look for understanding, patient people who can assist you in doing the things you enjoy (with some modifications, of course).

  5. Phil, I love soccer and simply being active. I feel the pain not only in your back, but the disappointment that come with the limitations. My heart prays for you….. #480, Stephanie

  6. I too have AS for the last 20 odd years. It appears to be like backaches until much later when a doctor diagnosed it correctly. I count myself lucky as I can still live life as normal as others without AS. It is not life threatening.
    I am 55 this year and I felt the pain has already subsided and I feel normal.
    I jog 4 times a week to keep myself healthy.

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