A.S. Face 0017 : Deanna Schmidt

Hi, my name is Deanna Schmidt and I was diagnosed with A.S. in December 1996 at the age of 27. At that time I was in the Military and after years of back pain was so glad to finally be diagnosed with an actual medical problem. Unfortunately I was unaware at the time that A.S. would lead me to being medically released 4 years later. Luckily I met a wonderful man in 1998 and we have been with each other ever since. After I was released I worked as a Graphic Designer for 4 years and in 2004 I was blessed by finally getting pregnant.  It was a high risk pregnancy that resulted in an emergency C-Section but she is as healthy as her Father, thankfully.  I’ve been a stay a home Mom for 6 years, which has been difficult because of AS but also because my Husband is in the Military and away a lot.  But I try my best to look after our daughter and the house.  Originally I was supposed to go back to work once she started school full-time but I have recently applied for disability through CPP because I have 3 medical problems and I honestly can not work even at a desk for more than an hour now.  My AS is now advanced, my SI joints are fused and I have kyphosis posture.  I also had a perforated ileum and received a Rt. Hemicolectomy due to Crohns and I also have Meniere’s which is very active.  Oh and I can’t forget iritis, luckily I haven’t had to deal with that in over a year!  I am currently on Humira, I don’t feel any better, in fact I’m more tired now if that is even possible.  Most days I feel so bitter and depressed but then I realize how lucky I am to be married to a wonderful man and that we have a wonderful and healthy little girl who really keeps me going in life 🙂
Brandon, Manitoba, Canada

12 Responses to “A.S. Face 0017 : Deanna Schmidt”

  1. Hi Deanna,
    Its a lot for you to cope with I know but you will, The life of a spondy is a hard one but we are tough. xx

  2. Dear Deanna,

    Stay strong and focus on the wonderful blessings you have. One day at a time, is all we can do.
    Sincerely Cookie

  3. Hi Deanna, thank you for your post. I am still trying to find a doctor to diagnose my AS. I was diagnosed last year with Lupus after 17 years of being told I only had Fibromyalgia and IBS, but I am certain I have AS. My son was diagnosed with AS last year at age 17 and already has some spinal fusion. I am curious as to your kyphosis. At this point I just look like I have the poorest posture ever, I have looked like this since my teens but now I have realized I can no longer even force my shoulders back and caught glimpse of myself in a mirror and realized how bad it has gotten recently. My doctor said it was due to being in pain all the time and “walking that way.” I believe it is kyphosis.

    Prayers to you.

  4. Keep smiling love….your not alone xxoo

    Deb Wilcox said this on October 15, 2011 at 6:37 am

  5. Deanna, I like your statement about “feeling more tired now if that is possible”… LOL …I too am very tired of being so tired! And it just gets silly anymore when I want to lay down after simple tasks, or after being up for just abit. (hard to think of days when we did so very much, right?) Thank you for sharing your story with all of us! I find your strength encouraging

    Valerie Noel Wulf said this on October 15, 2011 at 2:01 pm

  6. I also have crohns and AS. The Humira made me more tired as well and it didn’t work. I am going to start Remicaide soon. Iam on Prednisone and Methotrexate as well.

  7. Omg Deanna you too?? Would of never known. I just added myself on here under the name Dana. (didn’t want to put my real name). And saw your picture I was like no way!!! We’re both in the same boat. Yeah I was diagnosed in my early 20,s. I’m just on diclofenac 100mg. Gets me through about 16 hours..infertility for us as well.. That’s hard. Well maybe we can swap stories. I’ve don’t know anyone that actually has AS. People don’t understand the disease their like do you have a bad neck or back?? So sick of it. Anyways see you on the school grounds we should chat.

  8. Thanks everyone for the kind comments and support 🙂

    As an update:

    I was approved for disability last November not because of the AS or Crohns (they said ‘since were able to work with it before’) which is true but that was 8 years ago and now the AS is more advanced & my SI joints are fused. Anyhow, it was because of the Meniere’s being so advanced. And I was diagnosed with BVD (Bilateral Vestibular Disorder) this past December which explains so much. My ENT was confused on why I was still having daily dizzy spells and felling off balanced as my ‘brain’ should have adapted to the hearing loss by now. But now it all makes sense, the balance portion of my inner left ear is severely damaged and in my right is completely destroyed and of course there is no cure or even a pill to help with the BVD.

    Oh and as for being on Humira… I still don’t feel any better but my Specialist believes it’s the best drug for me. So I guess we’ll see what future x-rays and colonoscopys say on that matter!

    Dana – wow, small world! Yes, we should get together and chat over coffee one day 🙂

  9. Hi Deanna, My name is Julia Cook; I live in London ON Canada. On the other side of Canada. Your story resonates with me. As you, I feel so blessed to have such a supportive husband and my two girls that give me hope and strength. You are a beautiful person I can see it from your pictures. So sorry you are going through this. I still haven’t met anyone with AS (except for me friends here). I would love to have a chance to talk with you. Face 552

  10. Humira is the worst thing you can take. I was on it for a couple years and took myself off it. Every cold turned into an infection then pneumonia, The costs are higher than its worth. I am so thankful I found this site. I have lived with this for 30 years now and in that time I have found one other person with it. Godspeed.

  11. was your name Deanna mcdonald

  12. I can relate to your medical problems having rods and plates attached to my spine. Having a wonderful spouse helps however you must be string. Be well and safe. Semper Fi! Billy Reds

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