A.S. Face 0006 : Carl E. Stone

When I was somewhere around age 8 or 9 (somewhere around 1986) I was playing baseball. When I got a hit while at bat I was running towards first base and out of nowhere a pain went through my lowe back all the way through my right leg and I never made it to first base. I was helped off the field and later taken the E.R. and put trough many tests only to be told must have been growing pains. After that every game I played was the same way until eventually the coaches wouldn’t even play me anymore. I give it up. When I got to high school I decided to play football only t have the same results. My parents took me to doctor after doctor with nothing found to be wrong with me. For a couple of years the pain started going to different parts of my body and became worse. I had been told everything from growing pains to where I kept a wallet in my back pocket.  I started work right out of high school at a dust plant stacking 50lb bags of rock dust and although the pain got bad I toughed it out because I needed the job. It seemed that’s just how it was going to be.  Then on January 24th 1999 (my wife’s birthday) I woke up in so much pain I couldn’t move. I had very bad pain in the past but none like this. My wife helped me to the E.R. where I told the dr on call the whole story waiting on the same response. This dr seemed determined to find out what was going on. He put me thru every test imaginable and after all that he took blood. I had no idea why and didn’t really care I was just frustrated and after he gave me a cortisone shot I was sent home. A couple of weeks later (Feb. 3rd my birthday) I got a call from that dr asking me to come back to the E.R. That’s when he told me I had ankylosing spondylitis. Since then it has been a relief to know what is wrong but frustrating knowing there is no cure. So far I am still able to work even though my Dr.’S suggesting that I don’t but it gets harder everyday. I stay exhausted and that’s what bothers me more than anything. I can tolerate the pain pretty good but the exhaustion is really wearing me down. I hope they soon find a cure and I hope it becomes more recognized.  Also want to say that I know with God I can deal with this.
Thanks Carl Stone

Wise, Virginia United States Of America

7 Responses to “A.S. Face 0006 : Carl E. Stone”

  1. Thanks for your story Carl I hope that science can find some answers its too late for me but newly diagnosed people need all the help they can get not to end up like me.

  2. Dear Carl,
    Thank you so much for adding your story to our site. I hope early diagnoses will be something that happens soon. I hope that a cure in our future and with every “face” sharing their reality we work closer to making that a reality!

  3. Me too Kevin. I’ve been diagnosed now for 12 years and I thought by now somebody would have some answers.

  4. You are so right. With God, you will get through this. Stay strong and look to him for more strength.

  5. .

  6. I checked out this page because of my friend and stayed and read lots of other posts.
    I am heartbroken that anyone has to go through much suffering and inspired by your courage.
    I will pray for you and I hope they find that cure.. yesterday!!!!
    You are amazing, I hope you’ll be pain free real soon.
    God bless you!

    Greenbluebug said this on October 24, 2011 at 5:23 pm

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