Please Welcome!

•July 8, 2022 • Leave a Comment

Our newest Face!

Please Welcome

•July 8, 2022 • Leave a Comment

Our Newest Face!

Please Welcome!

•July 8, 2022 • Leave a Comment

Our Newest Face! A.S. Face 2243: Natalie G.

2700 Here We Come

•May 21, 2022 • 4 Comments

I am reaching out to all of you to help me reach my goal of 2700 Faces of AS.
I have been working on this project since October 8, 2011, eleven years in the making still 456 to go to reach my goal, well was never really my goal but a challenge given to me by Michael Smith who is Face 405. He is said 1000 Faces is great BUT 2700 Would be incredible. I said how did you come up with that number? 2.7 million people are believed to have Ankylosing Spondylitis.


If you have already submitted yourself then I ask you to please reach out to others and ask them to also be included.
If you haven’t, I would ask that you consider doing so, all you need to do is submit a picture and your name. My email is CookieHasAS@aol.com

Sharing your story is heart work. It’s not easy work, but it might be the most important thing you’ll ever do, because ……


“Sharing our truths can provide the opportunity for great healing.” — Kristen Noel


“There is a surrendering to your story and then a knowing that you don’t have to stay in your story.” — Colette Baron Reid


“Your heartache is someone else’s hope. If you make it through, somebody else is going to make it through. Tell your story.” — Kim McManus


“You are not your illness. You have an individual story to tell. You have a name, a history, a personality. Staying yourself is part of the battle.” — Julian Seifter

I know that when I wrote my story and left it on the website, I felt free. It was not as important for someone to read it as it was for me to write and leave it on the site, so I could be free of carrying it inside of me.

It is YOUR story, no one else’s, someone out there needs to hear your story or see your face and find hope there. You only have to include your picture, with or without your story, you can do a poem, quote or favorite song it is what you need it to be.
You can list your full name, first name or initials the choice is yours.
If you have someone that has left us and would like to share their story, I would be honored.
Please send your information to CookieHasAS@aol.com
With Faces in the subject line.
Either way thank you for being here….
Thank you all that believed in me.
Sincerely Cookie

•October 8, 2011 • 6 Comments

SEND YOUR STORY TO CookieHasAS@aol.com

(Please read the section below in its entirety it includes the agreement

and purpose of this website and the reason I am doing this.)

Although the world is full of suffering,

it is also full of the overcoming of it.

 Hellen Keller

Welcome to The Faces of Ankylosing Spondylitis.

This Site Is Dedicated To 

Some Of The Strongest People

You Will Ever Know

It is time to let our skeletons out of the closet and let the identities of the awareness ribbons be known!

I am a follower of the Scar Project that represents the reality of cancer, courage, strength, and hope.

This site is dear to my heart, because I  have lost many loved ones due to cancer.

I also have a disease known as Ankylosing Spondylitis.

I have decided to do a project that shows our reality and what our lives are really like.

My vision is to collect twenty seven hundred plus faces on this site.

I hope you will take the time to read what these courageous and wonderful people have decided to share with you.

It takes extreme courage to reveal one’s truth.

This site was started because of one man’s courage to show his “truth.”

My dear friend Kevin Andrews.

This site is in memory  of and dedicated to Stuart

This site is in honor of Sara Frankl

The requirements  to have your face included on this site are:

You must have  Ankylosing Spondylitis.

You must include a picture of yourself.

You are welcome to provide only a picture, or a picture along with a story, poem, quote, whatever you wish to share about your life with Ankylosing Spondylitis. This project doesn’t have a deadline and you are free to add or update anytime you wish.

Please send your information to email address Cookiehasas@aol.com Please read the disclosure listed below.

I appreciate each and every one of you. Thank you. Sincerely Cookie

We look forward to hearing from you.

Everyone is encouraged to add comments to any of the stories. I’m sure the writer would love to hear from you. I know I would!

“Out of suffering have emerged the strongest souls;

 the most massive characters are seared with scars.”

 Khalil Gibran

 

1

WHAT FAITH CAN DO 

 

 

 

 

© Cookie Hopper and The Faces of Ankylosing Spondylitis, 2011.

 

There is an implied agreement and permission granted to Cookie Hopper and the Faces of Ankylosing Spondylitis that the participant’s photo/story will be used only in order to raise awareness for Ankylosing Spondylitis. There will be no monetary value gained by either party. The Faces of Ankylosing Spondylitis agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness and will be a mutual agreement between both parties involved.

 

Once a photo & bio are submitted to Faces of Ankylosing Spondylitis ( Cookie Hopper), heretofore known as “Faces,” the individual submitting to Faces gives permission for Faces or its representatives or organizations coordinating with or whose services are retained by Faces or the invisible illness or Ankylosing Spondylitis community to use the image/likeness, name, & your bio or portions of the bio as written, from the moment of submission, for as long as Faces exists as a website and/or organization. Once included the removal will not be possible due to being numbered and accounted for in this project, but every possible action will be taken to change any information or information you feel is needed. Once the story or photo is published its removal from this project is no longer possible, but the way it’s listed or number may be changed in order to address this concern.

The stories submitted will be shared on this website, twitter and also on

The Faces of Ankylosing Spondylitis Pinterest Board (http://www.pinterest.com/thefacesofas/)

And The Faces of Ankylosing Spondylitis Information ProBoard ( http://thefacesofas.proboards.com/)

And The International Faces of Ankylosing Spondylitis website ( http://facesofas.blogspot.com/ )

And also have a place of Honor on the Spondylitis Association of America website

( http://www.spondylitis.org/patient_resources/faces-of-as.aspx)

 

 

All submissions become the property of Faces, and upon submitting, participants grant full rights to the submitted images & bios to Faces, and the right to use & name in connection to activities of Faces, from now into eternity, in all forms of media, including new media, and agree that they are the property of Faces from submission until the dissolution of the organization.” Since each “Face” is accounted for and given a number in a sequence, it will stand to reason that once submitted, the person submitting the information agrees fully to this. If for any reason if it becomes necessary the name and number may be changed in order to deal with privacy concerns in the future. The submissions may be listed under your full name, first name or initials, that is your choice.

 

Unauthorized use and/or duplication of this material from this website to be used elsewhere by other individuals beside Cookie and the individual without expressed and written permission from this blog’s author and writer of the individual story is strictly prohibited and legal recourse may be taken in the event of this happening. Excerpts and links may be used, provided that full and clear credit is given to [Cookie Hopper] [individual author of the story] [The Faces of Ankylosing Spondylitis] with appropriate and specific direction to the original content. COPYRIGHT and TRADEMARK NOTICE ©2012. There are underlying copyright interests in the various works of authorship associated with this the faces of ankylosing spondylitis. These copyright and trademark interests may not be reproduced and redistributed, with or without alteration in whole or in part, unless prior written permission provided by Cookie Hopper of Alvin, Texas US 77511, along with the individual author of the story. Trademark name “The Faces of Ankylosing Spondylitis” and” I Am The Face Of Ankylosing Spondylitis” name has been approved and acquired by Cookie Hopper February 10, 2012. Others wishing to use this name or logo are hereby requested to contact the owner Cookie Hopper to discuss their interest before doing so. The Faces of Ankylosing Spondylitis Trademark number is 40671 The stories submitted may not be used without the original author’s permission, along with Cookie Hopper, which you may acquire by submitting a request to Cookiehasas@aol.com. The phrase I am the face of ankylosing spondylitis and the phrase the faces of ankylosing spondylitis are protected under the copyright and trademark laws.

 

By submitting your photo & bio to Faces of Ankylosing Spondylitis (Cookie Hopper) you enter into a legal and binding agreement on both parties’ side. Cookie Hopper agrees there will be no selling of the stories or monetary value gained. Cookie Hopper agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness and will be a mutual agreement between both parties involved.

 

This is and considered a legal agreement between both parties included.

 

This site is protected by the Trademark and Copyright laws. 40671 as of January 2012.

 

Published

2012/01/13