My Dad had AS and unfortunately it was too late for him as the medicines had not been discovered yet. He was bent over with his nose closer to the floor than the ceiling. I watched him suffer for years never thinking I would not only feel his emotional pain but his physical pain. He never complained. NEVER. I would have trouble walking the mall in my twentys and could not understand how my friends could keep on going. I went along for years until I had to address what what was going on with me. I had a knee replacment four years ago. What a blessing. My hands started to have problems along with my spine and back. I do not have the marker in my blood but my Rumotoid doc treated my Dad and knew how to diagnose me. There are days when it hurts to even touch anything I had to give up my job as I was a visitation supervisor for children trying to reunite with their parents. I could not only sit for the visits but if I missed anything that would impact a childs life I would never forgive myself. My husband is awesome. He sees my pain and encourages me to rest. That is abouth the only thing that helps. This year for the first time I am having trouble wrapping Christmas presents and my friend is going to help. I have learned to live with my limitations but I am so angry that I can’t do the things I love. Snowmobing, unless I am a passenger. I want to drive. Jetsking, cant hold the gas and staying up at night. I know I am extremely lucky to have such a supportive family. I am taking humira injections, methotrexate pills, celebres and many more other meds. I can’t take cortizone as. they give me the shingles. I am not willing to slow down with my activities and it just makes me want to do more and outrun what is happening to me. One day at a time.
Maine, United States of America