My name is Goretti, I am 31, diagnosed with SA 5 years ago
I have been living in London for 5 years, originally, I am from Spain.
My painful story begins when I arrived to London. I came to this country to improve my English after finishing my Tourism Management Degree in Spain. I always wanted to work in International Tourism, so English was a must. Took my suitcase, and flew to London.
Language barrier that I could only access a certain type of unskilled jobs, so started working in a coffee shop, it was great! I met lots of young people with lots of energy that came to the city for the same purpose as mine! I loved it every minute!.
It was hard work, I am not going to lie, we worked long hours at a very fast pace, and there was some physical work to do too in the stock room. One day, I woke up and I could not move!, I was in agony so I went to the doctor immediately! I had an awful pain from by bottom down the back of my leg and I could hardly walk. Sine that day, doctors saw me come back very often for the same reason… once you have sciatic, it is very luckily that you have it again…. that is what doctors said. So I have spent 2 years misdiagnosed. I thought that I was lifting heavy weight at work… so decided to look for another job, but pain still would come back.
I was so young! only 25.. I was terrified… flare ups happen 3 times a year when pain remains for at leat a month, in between this flares up, lots of mornings when I feel really stiff and lots of evenings I can not sleep.
I have been getting by so far ….and some days I am very positive and others i feel really down.. but after years of being in complete denial, I am now committed to get fit, eat healthy and be as positive as I can when a flare comes up.
I have noticed that starch free diet somehow helps me, apparently it helps combating inflammation. I don’t follow it 100%, but I am getting better. Really hot showers gets me moving and neproxen is my best friend.
I am not under any treatment, doctor said that I my AS is not very developed and I only have some signs of inflammation and bone erosion in my hip. It affects my chest too, sometimes I almost try not to breathe, so my chest doesn’t expand and it doesn’t hurt. I am B27 negative.
I am engagged!and I am planning my wedding for 2014, hopefully we will finish all the refurbishment in the house by then! I can’t wait! I have many things I want to do, so I look forward to one day at a time and enjoy every little thing in life! I am sure you too… so chin up, keep positive, and look after yourself … be as happy as you can or more!
Lots of love Goretti