My name is Debbie Skytte and I have suffered for many years but I am newly diagnosed with AS and Fibromyalgia. I had random swelling and pain at the age of 11 and 12 years old. Specialists at the childrens hospital wanted to say I had AS at the time but said I was far to young.I see now that juvenile ankylosing spondylitis is an accepted illness. 19 to the age of 23 things seemed to slow down and I was doing well but after the birth of my children I have suffered. I have had horrible experiences with doctors and lost my faith and trust in them. My new family doctor sent me for an MRI and a new reumy. Well here I am 38 and newly diagnosed. I live in the Northern part of British Columbia Canada and specialists are hard to come by and you wait months to see them. The Reumy I met would like me to go on Humira but i am nervous about this type of medication. My family Dr, says its a bad idea but I feel like he doesn’t even understand my illness and he makes me feels like i’m just depressed and i need more exercise. I walk for 5 hrs a day and my heels kill me i cannot imagine more walking. This web site has answered a lot of my questions and it is nice to speak with people who finally understand what I am feeling. My friends and family are great but have very little knowledge of the disease, so their understanding is limited. Everyone I tell about Ankylosing Spondylitis have never heard of it so we need to get word out there to get more research happening.
British Columbia Canada