A.S. Face 0089: Audrey Ross
I am 47. I have had chronic joint pain since I was 29. I was misdiagnosed for years, had hip surgery (bursa removed) and had all sorts meds that didn’t help. For 15 years I had cortisone injections in my spine and hips every 3 – 4 months which were excruciating but did help for a small period of time. I was finally diagnosed with AS 3 years ago and by this stage, it was progressing rapidly and I had limited movement in certain joints. 23 months ago, I was put on Humira injections which have helped immensely although I do still have the odd flare up in my smaller joints and breast bone and have to ride the storm. However, I do have more movement and flexibility back but I am terrified that this won’t last. I have recently been getting eye problems and the irritation can sometimes be unbearable.
This is a horrible condition, we are stuck with it for life and each individual has no idea how or if it will progress to the point where our joints will seize up all together or if it will remain the same. It’s a scary thought not knowing what our future holds and I am sincerely glad that there are people in the same position who are trying to make others aware.
I hate that no one understands what we go through, I have given up even trying to explain to anyone how it feels.
Keep up the good work.