From One Of Our Own

•August 28, 2015 • Leave a Comment

Please take a moment to read this outstanding post from one of our Faces of AS…

An Open Letter To Healthy People..

Touched home for me in so many ways.

Thank you Charis for writing this but most of all for being Charis

Being Charis

The SAA is feeling pumped … Check it out!

•August 27, 2015 • Leave a Comment

We’ve been busy building a new, beautiful, mobile friendly website and we can’t wait for you to see it!! The next generation of SAA’s website is here. Visit us now @ http://www.spondylitis.org/
Hope you like it!

The Goal Is Still The Same

•August 27, 2015 • Leave a Comment

The dream is still there, the hope still lingers….. we are approaching the 4 year anniversary of this project and ……
My heart’s desire is still 2700 Faces of AS and my dream is for Mick Mars to be Face 2700.

I have not posted a face since June 29, and am reaching out to you all to help me reach this goal and accomplish what I set out to do.

I have hundreds of emails of people sending me their picture, no name or information and I have hundreds of emails of people sending me their story with no picture or name.

If you have reached out to me and your story is still not on the site, please reconsider sending it to me.

Emails are sometimes lost in spam or accidentally deleted, I have struggled with my own battles emotionally, physically and spiritually during this project but have tried my best not to miss anyone, but it happens.

All that is needed is a photo, you can add a poem, quote, novel, or nothing at all YOUR choice.

You can list under your full name, first name, or initials again your choice.

If you have a loved one who has passed away and never had the chance to be a part of this, you are welcome to send their information so they may be included also.

Ankylosing Spondylitis is referred to as an invisible disease, and we are trying to change that.

PLEASE HELP US….

Send your information to COOKIEHASAS@AOL.COM

Thank you

Sincerely Cookie

Thought I would share a cup of coffee with you…

•August 26, 2015 • 2 Comments

(thought this was worth sharing)

 

She Tells Her Grandma That She’s Just Been Cheated On So Grandma Tells Her To Do This

This is a good lesson for all of us, no matter what stage of life you’re in. You’ll see what I mean.


A young woman went to her grandmother and told her about her life and how things were so hard for her – her husband had cheated on her and she was devastated. She did not know how she was going to make it and wanted to give up. She was tired of fighting and struggling. It seemed as soon as one problem was solved, a new one arose.

Her grandmother took her to the kitchen. She filled three pots with water and placed each on a high fire. Soon the pots came to boil. In the first she placed carrots, in the second she placed eggs, and in the last she placed ground coffee beans. She let them sit and boil; without saying a word.

grandmawoman1

In about twenty minutes she turned off the burners. She fished the carrots out and placed them in a bowl. She pulled the eggs out and placed them in a bowl. Then she ladled the coffee out and placed it in a bowl.

Turning to her granddaughter, she asked, ‘Tell me what you see.’

‘Carrots, eggs, and coffee,’ she replied.

Her grandmother brought her closer and asked her to feel the carrots. She did and noted that they were soft. The grandmother then asked the granddaughter to take an egg and break it. After pulling off the shell, she observed the hard boiled egg.

Finally, the grandmother asked the granddaughter to sip the coffee. The granddaughter smiled as she tasted its rich aroma. The granddaughter then asked, ‘What does it mean, grandmother?’

Her grandmother explained that each of these objects had faced the same adversity: boiling water. Each reacted differently. The carrot went in strong, hard, and unrelenting. However, after being subjected to the boiling water, it softened and became weak. The egg had been fragile. Its thin outer shell had protected its liquid interior, but after sitting through the boiling water, its inside became hardened. The ground coffee beans were unique, however. After they were in the boiling water, they had changed the water.

grandmawoman2

“Which are you?” she asked her granddaughter. “When adversity knocks on your door, how do you respond? Are you a carrot, an egg or a coffee bean?

Think of this: Which am I? Am I the carrot that seems strong, but with pain and adversity? Do I wilt and become soft and lose my strength?

Am I the egg that starts with a malleable heart, but changes with the heat? Did I have a fluid spirit, but after a death, a breakup, a financial hardship or some other trial, have I become hardened and stiff? Does my shell look the same, but on the inside am I bitter and tough with a stiff spirit and hardened heart?

Or am I like the coffee bean? The bean actually changes the hot water, the very circumstance that brings the pain.. When the water gets hot, it releases the fragrance and flavor. If you are like the bean, when things are at their worst, you get better and change the situation around you. When the hour is the darkest and trials are their greatest, do you elevate yourself to another level?

How do you handle adversity? Are you a carrot, an egg or a coffee bean?


May you have enough happiness to make you sweet, enough trials to make you strong, enough sorrow to keep you human and enough hope to make you happy.

The happiest of people don’t necessarily have the best of everything; they just make the most of everything that comes along their way. The brightest future will always be based on a forgotten past; you can’t go forward in life until you let go of your past failures and heartaches.

When you were born, you were crying and everyone around you was smiling. Live your life so at the end, you’re the one who is smiling and everyone around you is crying.

May we all be like the COFFEE.

My wish for you is that nothing will ever steal the beauty of yourself.

That It Is

•August 9, 2015 • 1 Comment

Today

is a Good Day

For

A Good Day!

•October 8, 2011 • 6 Comments

SEND YOUR STORY TO COOKIEHASAS@AOL.COM

(Please read the section below in its entirety it includes the agreement

and purpose of this website and the reason I am doing this.)

Although the world is full of suffering,

it is also full of the overcoming of it.

 Hellen Keller

Welcome to The Faces of Ankylosing Spondylitis.

This Site Is Dedicated To 

Some Of The Strongest People

You Will Ever Know

It is time to let our skeletons out of the closet and let the identities of the awareness ribbons be known!

I am a follower of the Scar Project that represents the reality of cancer, courage, strength, and hope.

This site is dear to my heart, because I  have lost many loved ones due to cancer.

I also have a disease known as Ankylosing Spondylitis.

I have decided to do a project that shows our reality and what our lives are really like.

My vision is to collect twenty seven hundred plus faces on this site.

I hope you will take the time to read what these courageous and wonderful people have decided to share with you.

It takes extreme courage to reveal one’s truth.

This site was started because of one man’s courage to show his “truth.”

My dear friend Kevin Andrews.

This site is in memory  of and dedicated to Stuart

This site is in honor of Sara Frankl

The requirements  to have your face included on this site are:

You must have  Ankylosing Spondylitis.

You must include a picture of yourself.

You are welcome to provide only a picture, or a picture along with a story, poem, quote, whatever you wish to share about your life with Ankylosing Spondylitis. This project doesn’t have a deadline and you are free to add or update anytime you wish.

Please send your information to email address Cookiehasas@aol.com Please read the disclosure listed below.

I appreciate each and every one of you. Thank you. Sincerely Cookie

We look forward to hearing from you.

Everyone is encouraged to add comments to any of the stories. I’m sure the writer would love to hear from you. I know I would!

“Out of suffering have emerged the strongest souls;

 the most massive characters are seared with scars.”

 Khalil Gibran

© Cookie Hopper and The Faces of Ankylosing Spondylitis , 2011.

There is an implied agreement and permission granted to Cookie Hopper and the Faces of Ankylosing Spondylitis that the participants photo/story will be used only in order to raise awareness for Ankylosing Spondylitis. There will be no monetary value gained by either party. The Faces of Ankylosing Spondylitis agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved.

Once a photo & bio are submitted to Faces of Ankylosing Spondylitis ( Cookie Hopper) , heretofore known as “Faces,” the individual submitting to Faces gives permission for Faces or its representatives or organizations coordinating with or whose services are retained by Faces or the invisible illness or Ankylosing Spondylitis community to use the image/likeness, name, & your bio or portions of bio as written, from the moment of submission, for as long as Faces exists as a website and/or organization.

The stories submitted will be shared on this website, twitter and also on

The Faces of Ankylosing Spondylitis Pinterest Board (http://www.pinterest.com/thefacesofas/)

And The Faces of Ankylosing Spondylitis Information ProBoard ( http://thefacesofas.proboards.com/)

And The International Faces of Ankylosing Spondylitis website ( http://facesofas.blogspot.com/ )

And also have a place of Honor on the Spondylitis Association of America website

( http://www.spondylitis.org/patient_resources/faces-of-as.aspx)

All submissions become the property of Faces, and upon submitting, participants grant full rights to the submitted images & bios to Faces, and the right to use & name in connection to activities of Faces, from now into eternity, in all forms of media, including new media, and agree that they are the property of Faces from submission until dissolution of the organization.”

Unauthorized use and/or duplication of this material without expressed and written permission from this blog’s author and writer of the individual story is strictly prohibited and legal recourse may be taken in the event of this happening. Excerpts and links may be used, provided that full and clear credit is given to [Cookie Hopper] [individual author of the story] [The Faces of Ankylosing Spondylitis] with appropriate and specific direction to the original content. COPYRIGHT and TRADEMARK NOTICE ©2012. There are underlying copyright interests in the various works of authorship associated with this the faces of ankylosing spondylitis. These copyright and trademark interests may not be reproduced and redistributed, with or without alteration in whole or in part, unless prior written permission provided by Cookie Hopper of Alvin, Texas US 77511, along with the individual author of the story. Trademark name “The Faces of Ankylosing Spondylitis” and ” I Am The Face Of Ankylosing Spondylitis” name has been approved and acquired by Cookie Hopper February 10, 2012. Others wishing to use this name or logo are hereby requested to contact the owner Cookie Hopper to discuss their interest before doing so. The Faces of Ankylosing Spondylitis Trademark number is 40671 The stories submitted may not be used without the original author’s permission, along with Cookie Hopper, which you may acquire by submitting a request to Cookiehasas@aol.com. The phrase I am the face of ankylosing spondylitis and the phrase the faces of ankylosing spondylitis are protected under the copy right and trademark laws.

By submitting your photo & bio to Faces of Ankylosing Spondylitis (Cookie Hopper) you enter into a legal and binding agreement on both parties side. Cookie Hopper agrees there will be no selling of the stories or monetary value gained. Cookie Hopper agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved.

This site is protected under the Trademark and Copy right laws. 40671 as of January 2012.

1

WHAT FAITH CAN DO 

© Cookie Hopper and The Faces of Ankylosing Spondylitis , 2011.

There is an implied agreement and permission granted to Cookie Hopper and the Faces of Ankylosing Spondylitis that the participants photo/story will be used only in order to raise awareness for Ankylosing Spondylitis. There will be no monetary value gained by either party. The Faces of Ankylosing Spondylitis agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved.

Once a photo & bio are submitted to Faces of Ankylosing Spondylitis ( Cookie Hopper) , heretofore known as “Faces,” the individual submitting to Faces gives permission for Faces or its representatives or organizations coordinating with or whose services are retained by Faces or the invisible illness or Ankylosing Spondylitis community to use the image/likeness, name, & your bio or portions of bio as written, from the moment of submission, for as long as Faces exists as a website and/or organization.

The stories submitted will be shared on this website, twitter and also on

The Faces of Ankylosing Spondylitis Pinterest Board (http://www.pinterest.com/thefacesofas/)

And The Faces of Ankylosing Spondylitis Information ProBoard ( http://thefacesofas.proboards.com/)

And The International Faces of Ankylosing Spondylitis website ( http://facesofas.blogspot.com/ )

And also have a place of Honor on the Spondylitis Association of America website

( http://www.spondylitis.org/patient_resources/faces-of-as.aspx)

All submissions become the property of Faces, and upon submitting, participants grant full rights to the submitted images & bios to Faces, and the right to use & name in connection to activities of Faces, from now into eternity, in all forms of media, including new media, and agree that they are the property of Faces from submission until dissolution of the organization.”

Unauthorized use and/or duplication of this material without expressed and written permission from this blog’s author and writer of the individual story is strictly prohibited and legal recourse may be taken in the event of this happening. Excerpts and links may be used, provided that full and clear credit is given to [Cookie Hopper] [individual author of the story] [The Faces of Ankylosing Spondylitis] with appropriate and specific direction to the original content. COPYRIGHT and TRADEMARK NOTICE ©2012. There are underlying copyright interests in the various works of authorship associated with this the faces of ankylosing spondylitis. These copyright and trademark interests may not be reproduced and redistributed, with or without alteration in whole or in part, unless prior written permission provided by Cookie Hopper of Alvin, Texas US 77511, along with the individual author of the story. Trademark name “The Faces of Ankylosing Spondylitis” and ” I Am The Face Of Ankylosing Spondylitis” name has been approved and acquired by Cookie Hopper February 10, 2012. Others wishing to use this name or logo are hereby requested to contact the owner Cookie Hopper to discuss their interest before doing so. The Faces of Ankylosing Spondylitis Trademark number is 40671 The stories submitted may not be used without the original author’s permission, along with Cookie Hopper, which you may acquire by submitting a request to Cookiehasas@aol.com. The phrase I am the face of ankylosing spondylitis and the phrase the faces of ankylosing spondylitis are protected under the copy right and trademark laws.

By submitting your photo & bio to Faces of Ankylosing Spondylitis (Cookie Hopper) you enter into a legal and binding agreement on both parties side. Cookie Hopper agrees there will be no selling of the stories or monetary value gained. Cookie Hopper agrees to uphold the integrity and honor of each individual’s story when doing projects to raise awareness, and will be a mutual agreement of both parties involved.

This site is protected under the Trademark and Copy right laws. 40671 as of January 2012.